I'm afraid I suffered a hiccup yesterday in that I tipped a glass of orange juice over my portable laptop keyboard, thereby rendering me unable to post or email.
In summary, we saw a new oncologist who specialises in immunology, with a particular emphasis on new compounds which are going through the early stage approval process. He gave us some advice on over the counter vitamin supplements which help with some types of cancer.
He also identified a compound which is far more effective on bone pain than the one I have been taking via infusion at the hospice.
Lastly, he identified a compound which could well be effective on the skin lesions of my disease, and for which he is waiting for trial go-ahead in the next month; if it does proceed he sees me as an ideal candidate.
Overall the situation has not changed, as nothing mentioned can be regarded as a cure. Nevertheless they should have a positive effect on my quality of life, which is important.
apart from the orange juice,(once did the same with red wine whilst on a plane - nasty business - couldnt stop playing with my new "toy"!) that seems like sufficient there to at least make the trip worth while....good luck with it all.
ReplyDeletebtw if you read this in time, am going into the big A around 1130 (thurs)so if there's owt i can get just holler.
as ever
gm.m
Hi george!!
ReplyDeletedid you tell yourself off for having liqid anywhere near your lap top ?
Or shall i send my mum round :)
its good news that there could be better pain control though some of the chewable vitamins are not to bad,mum used to give us omega 3 oil it is supposed to help concentration one morning ( before we were very awake!) she gave louis them the wrong way round and louis chewed the fish oil the look on his face was a picture and we both lernt to check everything we are given first thing in the morning,just to ensure it never happens again!! hehe
keep smileing
Danielle xxx