Wednesday 28 October 2009

Wednesay Evening update

Sorry to have been quiet for a few days, although some of you may prefer it that way. In fact we have been having somewhat of a battle with the pain in my leg recently. We and our Hospiscare nurse have revised the pain control medication, but the pain has been increasingly intolerable, to the point where we finally met her today and switched the morphine delivery to skin patches, and we have added local control of the skin pain using gel. It will take a day or so to switch over and judge the effectiveness of the changes.

We have also been giving some thought to how we can make use of the numerous kind offers of assistance that keep arriving. For example, our youngest son, who has no transport and lives in Glastonbury, is doing his best to visit weekly. This taking up about four hours of Chris's time per week (two trips times two hours). It would be really helpful if folk could step in and help with this. It would also be good if people could help with drug pickup from the pharmacy when theyare in Axminster. Offers on either front are welcome.

On the treatment issue, we now have an appointment next Tuesday evening in London with a consultant oncologist specialising in early clinical trials for melanoma. We have no idea whetherthis holds any promise for my situation, but it seems worthwhile checking out, even though it is unlikely to change the end game.

4 comments:

  1. damn sorry to hear about the increased leg pain.

    as for transport, i'd love to help with a glastonbury trip or two cos i aint been up the tor for yonks but circs sadly do not permit..however, am very happy to assist re local stuff.
    just email me (i check every morning) when a pickup etc is required and i'll let u know if its poss that day. im in axminster approx three times a week these days.

    with every best wish for the london trip.

    gm.m

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  2. Geprge amd Chris.
    John says would I please tell you that he is in Axminster every Tuesday and Friday morning and would be more than happy to pick up anything you need from the surgery (or anywhere else for that matter). Please do let us know. I look at your blog every morning.
    Our thoughts are always with you both Bren x

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  3. Happy to help with the Glastonbury runs and prescription pickups. H x

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  4. I would also be quite happy to help with either - anything I can do to help.
    Gill

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